• Uncategorized

    It’s Back and Better than ever

    “Every Step of The Journey. IS the journey“ Hi There, I can’t begin to tell you what a wild ride I’ve been on this last month. I veered off my path, then back, only to be confused, then finally to greater clarity. (always in progress) All the while doing homework, going to the cabin for the end of winter kick off.  Making sure Heart Shaped Rocks gets published and revamping my message to have a further reach.  Whew! And this is not all but thats a different story… What has come out of it is bringing Thrive Thursday back with my new branding. If you remember when my son passed away last year…

  • Duchenne Muscular Dystrophy,  Uncategorized

    Duchenne Support Consulting

    Why Duchenne Support Consulting? Learn coping tools to live the best life Supportive caring environment to express yourself Talking produces a “feel good” hormone Get complete understanding from someone who knows Somewhere to turn when things just suck Complete confidentiality I became a Duchenne Support and Advocacy Specialist the day my son, Luke, was diagnosed at 4 years old. That was 22 years ago and surely hasn’t ended. Even after Luke passed away last year, I kept on advocating although as you can imagine his death left me reeling with anguish, scared an a bit unsure how I was to proceed.  I know I will have to endure the grief of losing him…

  • Duchenne Muscular Dystrophy,  Uncategorized

    Happy SUPER New Year

    As we dive in to the new year in particular the month of January I’m treading softly as the 21st marks my son’s one year anniversary in heaven; ending one of the longest, hardest years of my life thus far. I admit I’ve been half looking forward to the new year and half dreading it. So I decided to create a living on purpose plan for myself; one that includes plenty of buttoning up the old, Duchenne books/advocacy and trying new things. Including working outside the home for a few hours a day. Way new for me. Even though 2013 was a huge challenge emotionally I somehow still managed to publish another book,…