Duchenne Muscular Dystrophy,  Uncategorized

Happy SUPER New Year

As we dive in to the new year in particular the month of January I’m treading softly as the 21st marks my son’s one year anniversary in heaven; ending one of the longest, hardest years of my life thus far. I admit I’ve been half looking forward to the new year and half dreading it. So I decided to create a living on purpose plan for myself; one that includes plenty of buttoning up the old, Duchenne books/advocacy and trying new things. Including working outside the home for a few hours a day. Way new for me.

Even though 2013 was a huge challenge emotionally I somehow still managed to publish another book, finished writing one, publish 11 eThrive Duchenne Digests, Dove head first into the Duchenne Nutrition controversy, created and maintained the Thrive Network and created 22 blog posts many of which are videos.

My son, Luke, defines so much of who I am and his care took a huge chunk of time I often find myself worried about what I’m going to do now. However armed with a new plan, some goals, great family and friends and not to mention Jesus I’ve been asking for a sign on what the new year will bring. Although scared I have this feeling things will start looking up. I’m ready to smile more, do more and be more than I ever thought possible.

Well, it looks like I’m not far off, the good stuff is already starting. I got a sign this morning that things are actually going to be SUPER this next year…. January 2014 brings us 2 Super Moons in one month. New years the 1st one and then again on the 30th which is my 15 year wedding anniversary. (A super moon is a full moon or new moon closer to the Earth then normal making the moon look very large.) I so hope I get to see these moons in person. However the for cast is calling for snow on the 1st.. maybe I’ll get lucky on the 30th.

One thing for sure 2014 I will continue to live in.

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I hope you have a HAPPY SUPER NEW YEAR!
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P.S One of my plans for 2014 is creating the first ever Coffee-Table book for Duchenne show casing our beautiful Duchenne children and young adults. To find out about how you can participate in the book click here. 

One Comment

  • dr.sohail rana

    HI MISTY
    FIRST HAPPY NEW YEAR. I HAD PUT COMMENTS ON THE BIRTHDAY OF YOUR LOVELY SON.THERE IS GREAT HIDDEN PAIN IN YOUR SMILE.ITS VERY HARD TO BALANCE BOTH.GOD BLESSED HIS SOUL,HE IS ENJOYING IN HAVEN.
    REGARDS
    SOHAIL RANA

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