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Thank you! You are NOW a member 😀  Did you check your email you registered with yet?

 

*How to get the most out of  the THRIVE NETWORK COMMUNITY…your very own Duchenne Advocacy and Support Club*

This is all new and I completely understand the roller coaster of Duchenne threatens to overwhelm you (sometimes it succeeds) everyday so I set up this member area just for you.

Thrive member  Mini Tour:

First Stop: Click the invationa link to go set up your member profile here. Please note it can take up to 24hrs for membership approval. (( DO NOT SHARE THIS LINK WITH ANYONE )) Its for Thrive members Only ))

Once logged in be sure to answer the question “How does Duchenne touch my life?” Then post a handful of pictures. Please know that I want to get to know you so I can best assist you. This platform is set up to be your very own online support journal of your story with Duchenne. The more you share the more you will get out of your time spent here. 

Please note: You will have your member registration username and password and your community support platform username and password. Feel free to set them as the same for easier access to both. 

Second: Check out the forum. You will find most everything you need there. You’ll find lots of different discussions. Including links to the monthly THRIVE! In the face of Duchenne E-digest, the mini How to advocate video series, new book advocacy projects and more. Remember this club is BRAND SPANKING new…I invite you to be the first to speak up…

Third: You also have access to other members and me via the Video Chat feature. Now there is absolutely no reason to feel like you are the only one fighting the Duchenne fight. What a wonderful community we will are creating together. We ARE making a difference! I look forward to seeing you in the Chat room… to schedule a chat with me please email me at mistyvanderweele@gmail.com.

Fourth: Please direct any support or technical difficulties to me via email mistyvanderweele@gmail.com. ((DO NOT POST ON FACEBOOK)) Although I am on facebook daily to better assist you email is required.

THANK YOU♥

Fifth:You can access the Member Area or Community Support platform tab above 24/7.